Showing posts with label multiple sclerosis society. Show all posts
Showing posts with label multiple sclerosis society. Show all posts

Tuesday, October 24, 2017

"OMGGGGGG" - a new post

OMGGGGG

The sparkled life blog is back!

But wait...didnt I swear off writing and blog posts February 2016?  Isnt the previous post titled "the last post"? Are we trying to make blog writing happen again?

Yes, to all the above.  

I had sworn of writing on the sparkled life.  Why?  It got too difficult.  I needed a break.  My finger muscles contract making typing difficult.  I didnt want to be known as the "the girl with MS".  I felt I had nothing more to say.  And on and on and on. 

Recently I was at my neurologist where there was a new patient, a woman my age.  She didnt look scared but she did look overwhelmed.  It took me back to when I was first diagnosed and how I had wished I had someone to tell me it was all going to be ok.  

That's why I started this blog in the first place - because I had searched for someone, anyone, with a "story like mine" and couldnt find one.  All I could find on MS were stories from people with less hard symptoms like a numb thumb (any symptom is challenging but where were the people who could no longer walk/talk/use their arms?!?!?) or kids with info on how they "healed" their ms with witchery.  

So, I thought, "hell, I'll write the story".  

That was a while ago.  And I had forgotten that flame, that ambition, until I saw this girl the other day.  I so wanted to go up to her and tell her its going to be ok, that she was going to get through this, that it was going to hurt, it was going to be a bitch, but she was strong and was going to make it. 

Butttttt you cant really do that in doctors offices.  

Instead, that fire ignited in me again.  I thought about all the lessons and mistakes I've gained in the past 5 years since diagnosis and how they just might be able to help others.  And maybe, that girl will get a random facebook message from her aunt with a link to this blog.  And she'll be comforted that shes not alone.  

And that's why Im back.  (: