Showing posts with label blog. Show all posts
Showing posts with label blog. Show all posts

Monday, August 5, 2013

The Happiness Project

I recently started to read "The Happiness Project" by Gretchen Rubin.


Three chapters in and I'd encourage this book to anyone!

It's no secret that a happy life is a better life.  But what is it that truly makes us happy?  What is the secret sauce?

Even Gretchen does not fully come to an answer.  She has suggestions on how to become happier but at the end of the day, there is no secret to being happy.  You just have to be it.

Sounds easy enough right?  "I will be happy tomorrow" you think to yourself as you fall asleep.  Then you wake up late, spill your coffee all over your white shirt and and feel like happiness can wait till tomorrow.

As I'm reading this book I started thinking about my own life, my own happiness.  I realized that I am at a happier state now than I was before I got sick.  How can that be when life as a MS sparkler mostly stinks?  How can I be happier now with my dreams smashed than before when my dreams were within reach?

There are two main factors that help in reaching a better happiness level:
1. Positive thinking 
2. Making others happy

Positive thinking can be difficult.  It seems so much easier to look at all the dark in life instead of all the light.  But as you train your mind to focus on the positive, it will become easier and happiness will shine throughout.  

I recently read that people who get botox are a percentage happier than those who do not because, based on this study, it's harder to frown.  Thus, they continually express happiness through facial expressions and then internally, fulfill that higher happiness. 

I'm not suggesting we all go out and get botox.  But its a rather interesting point: that if you are happy on the outside, enthusiasm will grow on the inside. 

Its not easy for me to contiunally think happy thoughts as I enter the real world.  I often find myself getting caught up with the stares and the faces people have when they see me.  In order to test this theory, I've been leaving the house with an extra accessory: a smile.  What I've discovered is that when I have a smile on my face, the looks diminish, for people see that I'm just a person, same as they are.  Plus, if I can still smile though I have a disability, it puts others at an ease; they too smile back instead of staring with questions and concern.

The second factor I've discovered is a huge direct link to one's happiness level.

Prior to becoming sick, I was very selfish.  I choose my "happiness" over others; I thought I'd be happier by having a big job so I would work on the weekends instead of hanging out with friends.  I'd spend the weekends decorating my apartment instead of visiting my long distance boyfriend. Instead of lunching with co-workers, I'd hurry to the stores to do some shopping to stay up with the latest trends.

But at the end of the day, I wasnt fully happy.  I was stressed, over-worked, tired, lonely, and found it harder to put a smile on my face. 

When diagnosed with MS, those selfish tendicies I had were taken away from me against my will.  Now I'm on disability, I live with my parents and my budget is a little more tight when it comes to fashion.  However I have more time for others.  And my happiness level has gone through the roof.

My schedule is flexible, meaning I can work around others.  I have time to sit and listen to other people's stories.  I am more aware of people around me's feelings and can help out accordingly. 

Im not saying that I am now completely selfless.  Rather, that by spending more time thinking about other people's happiness, I have grown in my own.  And being surrounded by happy people makes it easier to have positive and happy thoughts.  It's a beautiful cycle.

I had to learn the hard way how to achieve a higher level of happiness.  I had to lose a lot to get to this point.  And I am only part way there; there's always continuous ways to grow.  

I am thankful though to have made these discoveries.  MS sucks, no doubt about it.  But as I learn to grow and accept it, I see the beautiful returns that have been given due to the suffering.  I think of these returns as little roses from heaven.  The path is thorny and hurts but at the end you receive one of the most stunning gifts.  

To happy days!!



Love,

Thursday, July 25, 2013

Team Sparkle Bike MS: City to Shore 2013

Yes its that time of year again...Team Sparkle Bike MS: City to Shore 2.0!!

While the participants of Team Sparkle start prepping their butts for the long bike ride, we are again looking to grow our team to VIP status with the help of YOU, the lovely donor sparkle supporters. 



Last year Team Sparkle raised over $12,000 through a lot of wonderful donors.  This provided Team Sparkle with the encouragement and hope needed to bike the 185 miles from Philadephia to Ocean City, NJ and back.  



The whole overall experience was, in a way, breathtaking.  For me personally, each $1 donated meant someone believed in my fight, in my hope.  It also was amazing to witness not only my loved ones but 1000s of strangers sacrificing a weekend to bike for my cause.  


The money donated did more than give me hope; it went straight towards improving my quality of life.  A portion of the money raised through Bike MS rides throughout the country goes towards research and development, specifically to find medicines that help manage MS. 

Over the past year I have tried 2 MS management drugs, not responding to either category.  This was extremely discouraging for the next option was the Chemotherapy levels (obviously something to be avoided for as long as possible).  

But, with the help of the money from the MS Society - Bike MS, a new drug was approved called Tecfidera on March 21st (my 1 year MS anniversary...convenient).  This drug is oral (meaning no needle injections three times a week or monthly infusions!!) as well as very promising.  Im in my first month currently and hopefully in the next few months will know the affect it is having on managing my MS.



For those that donated last year, thank you!!  It may have only been $30 but that generous amount helped provide me with medical stability and hope, as well as kept me out of the chemo world.  

This year's ride is starting out even more special as Bike MS: City to Shore has asked me to be involved on a few different levels with regards to promotions.  

I was humbled to be a part of their postcard campaign (see below) as well as they asked me to provide a few words at their opening meeting, all around the theme of "Why we ride".  I've had the opportunity to get to know some of the members of their team and am honored to be volunteering along side them.  They are just fabulous!!




This year Team Sparkle's Goal is $5000 and our team members are Brian (my daddy), Connor (brother), Kevin and John (twin brothers), Tonya (my mom aka Captain Team Sparkle) and myself (yay!!!).  

There are three ways in which you can be a part of Team Sparkle:

2. Promote Team Sparkle (create awareness by sharing Team Sparkle's information and donate page)
3. Join Team Sparkle in riding the race yourself!!  There are a few different routes to choose from and we would love to have additions to our team!! (visit the donate page for more information: http://main.nationalmssociety.org/site/TR/Bike/PAEBikeEvents?team_id=349549&pg=team&fr_id=20331)


Anyway you choose to be a part of Team Sparkle is greatly appreciated!!  I look forward to seeing the rewards from this campaign and sharing the updates with you!

Love and thankful,